You are hereBlogs / JuliaFuller's blog / Fetal Alcohol Syndrome Diaries: Never Saying I Am Sorry

Fetal Alcohol Syndrome Diaries: Never Saying I Am Sorry


JuliaFuller's picture

By JuliaFuller - Posted on 15 January 2009

The child with FAS, Fetal Alcohol Syndrome, deals with numerous processing inconsistencies throughout each day. Parenting the FAS child is difficult and it is easy to become frustrated or even angry with the child. Many parents who adopted infants and toddlers with FAS, were unrealistic about what it would be like parenting the older FAS child. Many hopeful adoptive parents believed that their love would be enough, or their early interventions would erase the damage done by the alcohol exposure. Once thing we have noticed with our 15-year-old daughter, who has FAS, is that she fails to interpret social and verbal cues. For 12 years, we have had to tell her to apologize to a sibling, a stranger, or us when an apology is warranted. She never says, “I am sorry,” on her own without verbal prompting.

We have explained to her different scenarios when a person should automatically apologize. She has daily examples set for her by her siblings, including her two-year-old sister, and her parents. Apparently, her ability to process information is so damaged, despite having an IQ in the average range, that she cannot figure it out.

During 15 years of fostering children for the state of Michigan, we have helped to parent nearly 100 children. We adopted a daughter who came to us as an almost four year old who is now 15, who has FASD. When she came to us, her diagnosis was cognitively impaired also known as mild mental retardation. Like so many hopeful adoptive parents, we thought it didn’t matter. We thought that with our love and every special service available she could overcome her FAS. In some ways, she has. Today she has an average IQ in the low 90s, and test in the average range for achievement when tests are given verbally. However, life still is not easy for her, or for those of us who live with her. She frequently misunderstands written words making schoolwork 3 to 4 grades lower than her age warrants, a struggle despite an average IQ. She also struggles with writing understandable sentences frequently leaving out words and using incorrect forms of verbs and nouns. We have tried numerous countermeasures over the years; however, she rarely complies with them for more than a day or two, even when they really help her succeed. It is not my intent to make fun of children with Fetal Alcohol Syndrome by this blog. However, sharing experiences helps us keep parenting our FASD children in perspective. Maintaining a lighthearted attitude towards the countless mistakes makes life better for the entire family.

Photo Credit: derfel_ie

 

 

  • Special Needs Adoptive Parenting – Latent or Delayed Puberty
  • Special Needs Adoptive Parenting - Pituitary Dwarfism
  • Special Needs Adoptive Parenting - Juvenile Diabetes
  • Sexually Transmitted Diseases - Human Papillomavirus HPV
  • Special Needs Adoptive Parenting - Juvenile Diabetes
  • Guest blog: Just Borrow Eggs From Your Mother for Infertility
  • What Is Adoption Subsidy, Who Gets It, How Much, and for How Long
  • How to tell if your child has SPD Sensory Processing Disorder
  • Adopt for Free and Get Special Needs Adoption Income Tax Credit
  • How to Prescribe Behavior to Prevent Child Meltdown.
  • How to Cope With Klinefelter Syndrome

     

     

     

     

  •  

    AngelaW's picture

    I keep meaning to ask. Does your daughter have an IEP and is for learning disabilities or another category?

     

    AngelaW
    The ones that you love the most are usually the ones that hurt you the most. - Unknown

    JuliaFuller's picture

    Beginning at the age of 4, she has had an IEP. Originally it was for Congnitive Impairment, she had speech therapy and OT. During the last test, over the current summer, the school psychiatrist indicated that she has an average IQ and is no longer eligible for most services. They indicated that they might be able to offer some reading assistance. They wanted to enroll her in age appropriate classes, 9th grade. She is currently struggling to pass 5th and 6th grade classes, Es and Ds. I didn't send her back to public school, it would have been setting her up for failure.