Fetal Alcohol Syndrome
Fetal Alcohol Syndrome Diaries: Resources for Getting a FAS Diagnosis in Michigan

Here is a very useful list of resources for getting a FAS diagnosis in Michigan. When I saw this list on a Yahoo group for families parenting FAS children, I felt compelled to share it with you. There is a link provided for those who are not in Michigan to find resources as well. Sometimes it is difficult to distinguish between "normal" age appropriate behaviors and institutional, FAS, or some undiagnosed condition behaviors. But When it comes to parenting FAS children, we need all the help we can get.
Diagnosis of FAS Children' s Hospital of Michigan, Department of Genetics
3901 Beaubien
Detroit, MI 48201
Phone: 313-993-3891
Contact: Ellen Podeszwa, Coordinator
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Fetal Alcohol Syndrome Diaries: Physical Maturity Does Not Always Equal Increasing Responsibility

Some friends found 12 boxes of old books that someone had dropped off at the local recycling center. They were allowed to take the ones they wanted, and lovingly searched through a box for my family. I began reading a book by Charles R. Swindoll titled “Three Steps Forward, Two Steps Back, Persevering Through Pressure.” The title reminded me of the dilemma many of us face parenting our FAS children, except maybe the other way around. Just when I think I am making some progress with my nearly 16-year-old daughter, she seems to regress further than before. A paragraph in the first chapter seemed to crystallize the basis of my frustration in parenting my daughter afflicted with fetal alcohol syndrome.
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Fetal Alcohol Syndrome Diaries: My Birthmother Called and Upset Me so I Had to Runaway

Today, I returned from the store to find our 16-year-old FAS daughter missing. The younger children and I had left for the grocery store around 3:30 PM. They had finished their homeschool assignments before noon; so far, she had only completed one assignment, so she stayed home to work. When we returned home an hour later, she was missing. After about an hour, her brothers and sisters concluded that she had runaway.
Fetal Alcohol Syndrome Diaries: If the Glove Fits You Must Have Done It

Occasionally we find streaks of poop (feces) on the bathroom walls next to the toilet, about head level if a person were sitting. Nobody is always the one accused of this dastardly deed. We have never been able to identify the real culprit, even though it has been going on for several years. However, this time, there was a perfect handprint. This reminds me of the pop tart caper last month. I found a pop tart with a perfect bite taken out of one side behind the piano. Nobody put it there, so we held it up to each child’s mouth to find the owner. Sure enough, it was the 15-year-old. Her lies are beginning to flow as smoothly as the air she breathes out.
Fetal Alcohol Syndrome Diaries: Bleeding All Over My Underwear

My 15-year-old daughter occasionally takes one of my bras and sometimes underwear. But, during the last month or so, she has upped the ante. Perhaps because it really upsets me, she has decided to push my buttons. First, she took the only new bra I had purchased for myself in years. Oh, she thought it was hers. Probably because all of her bras have her name written inside to prevent her from taking mine, but this one did not, confusing I am sure. Next, I found a pair of my underwear, blood stained along the inner legs and rear. Um, I had a hysterectomy 14 years ago, and only one person living in our home currently has a period, her. She actually tried to argue with me, denying that she had worn them. Then, I found my grandmamma undies.
Fetal Alcohol Syndrome Diaries: Obeying a Two Year Old

Today, our 34-month old daughter, asked her big sister to paint her fingernails. We paint fingernails outside, as the smell affects those suffering from asthma symptoms. Outside they went and I soon followed to feed the horses. My toddler daughter then decided that she wanted to feed the horses instead and began to follow me. However, upon arriving at the barn, changed her mind again and began calling to her big sister. I looked up and her sister was there, so I handed her over the fence. As I began to feed the horses, I heard my bossy toddler daughter yelling, “GO AWAY,” repeatedly to her big sister. As I emerged from the barn, I found the toddler in the equipment barn playing in an open bag of treated soybeans, alone.
Fetal Alcohol Syndrome Diaries: Imaginary Behaviors

The child with Fetal Alcohol Syndrome, FAS, deals with ongoing processing inconsistencies that can affect every aspect of daily living. While those of us parenting FAS children understand that inconsistencies of behavior exist, that does not seem to lessen the frustrations that come with every day living. Our 15-year-old FAS daughter is really struggling with everyday functioning making current life with her very difficult. While over the past decade she has had occasional episodes of bazaar behavior and imaginary behaviors, lately, it has been a daily occurrence. Anything she says these days is suspect and must be checked out and inspected for verification. I spend more time supervising my 15 year old than I spend supervising my 2 year old, which is wearing me down and frustrating me. .
Fetal Alcohol Syndrome Diaries: Fixation

The child with Fetal Alcohol Syndrome, FAS, deals with ongoing processing inconsistencies that can affect every aspect of daily living. While those of us parenting FAS children understand the inconsistencies of behavior, that does not seem to lessen the frustrations that come with every day living. Our 15-year-old FAS daughter is really struggling with everyday functioning. I try to give her jobs to help around the house that will not end up causing me more work once she is finished. I have been repainting all the rooms in our house over the last few weeks, in between homeschooling, blogging, cooking meals, and laundry. I asked my daughter with FAS to try to wash the crayon and marker off from her bedroom door and the side of her closet. Well, I should have checked when I noticed that she had been sitting in the same spot for over an hour, but I was busy painting a nearby wall. When I finally checked it was too late, I should have realized the fixation sooner.
Fetal Alcohol Syndrome Diaries: Cutting

The child with Fetal Alcohol Syndrome, FAS, deals with ongoing processing inconsistencies that can affect every aspect of daily living. My daughter with FAS is a teenager, 15 years old. Over the years, since her adoption at age six, we have had several episodes of inappropriate cutting with scissors. Every occasion also included her lying about her actions, and that usually lasted several days before the truth finally came out. She has cut her own hair, cut her eyelashes off, and cut the horses’ body hair down to their skin in the middle of winter. My daughter’s older sister, who also has FAS, kept cutting the hair off from her older adoptive sister’s dolls. I have heard these same stories from other frustrated families with FAS children.
Fetal Alcohol Syndrome Diaries: When 18 Cannot Come Soon Enough

Parenting a special needs child can be a real struggle. It can cause arguments between parents as well as other loved ones who question your techniques. When your child has FASD along with other issues such as RAD or Bipolar Disorder it gets even more complex. Other people see a compliant sweet child and they do not understand how you could be angry with such a darling child. They may begin to question why the child is being disciplined or always seems to be in trouble.
Behind the closed doors of home the child is always breaking things, setting little traps just for the parent, lying, stealing, and confrontational. Life can become almost unbearable at home for the adoptive parent who is the target of the RAD. Years of weekly counseling, medication therapy, and long talks with the child about the future yield no results. The frustration is overwhelming as you poor yourself into helping the child succeed. Finally, during the teen years you reach a point when 18 cannot come soon enough.



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